InforMS: Winter 2017

InforMSWinter2017 coverWhat's Changed?

A look at what's changed in MS over 20 years.

 


 

What's Changed?

By Peter Broderick and Kerri Cechovic | The care and treatment of MS has changed a lot over the years, and the Rocky Mountain MS Center has changed with it. Thirty years ago there were no drugs that targeted MS. There were no sophisticated MRIs. And there was a lot less information. The only constant in MS over the past three decades is that if you receive an MS diagnosis, you are scared.

When Patricia Daily started at the MS Center nearly 30 years ago, treatment focused on managing symptoms. She was there to help her clients navigate their fears. Today she is still educating patients and assuaging their concerns. Daily is a licensed clinical social worker who’s spent most of her career working with our MS community through counseling, conducting MS 101 classes, and community education. She has also been the primary author of InforMS since 2007. While her passion and mission to help MS patients and their families has never changed, her message has evolved over time—now there are more tools available that allow patients to control their MS instead of allowing MS to control them.

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Now You See It, Now You Don’t: MS & Invisible Symptoms

By Patricia Daily | Some medical problems, for example a broken leg, have visible physical manifestations. That there is something amiss is obvious to everyone. Other medical conditions, for example migraines, cause symptoms that interfere with life and health but are not usually visible to others. Medical problems that have invisible symptoms are frustrating because others often
fail to recognize the limitations that they impose. Multiple sclerosis is a chronic neurological disease that can cause visible and invisible symptoms. This article focuses on the different challenges that these different symptom presentations cause for someone living with MS.

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My Coping Strategies

In 1999, Nancy Boyd began having problems with vertigo and balance and she lost hearing in one ear. In the process, she had her first brain MRI which showed some lesions that might be MS, and she was also diagnosed with Meniere’s disease. For the next decade, Nancy endured medications, therapies, allergy testing, diets, shots through her ear drum, and two surgeries. Some neurologists said she had MS, some said she didn’t.

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