Rocky Mountain Multiple Sclerosis Center

Toll-free 1-800-253-7884
www.narcoms.org
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The North American Research Committee on Multiple Sclerosis (NARCOMS) is an active national Registry of over 34,000 individuals who have multiple sclerosis (MS). NARCOMS was initiated in 1993 by the Consortium of Multiple Sclerosis Centers (CMSC) and is led by Dr. Timothy Vollmer, M.D. to facilitate multi-center research that will lead to more effective treatments for MS.

The registry serves several purposes. It can expedite the recruitment of MS patients for clinical trials across the country and ultimately reduces the cost associated with that process. The data are also used to investigate important aspects of MS, such as the neutral course of the disease, patterns of care, long-term effects of treatment and factor affecting quality of life.

The project provides a unique opportunity for all MS patients over 18 years of age to facilitate MS research. All adults with MS are invited to join in this long-term research study by first enrolling in the registry by filling out a baseline survey and then completing an update questionnaire twice a year, either by mail or conveniently on line at www.narcoms.org.

All information gathered is held confidential and used for statistical analyses only. Research results are published in scientific journals and shared with the participants in an informative quarterly publication, Multiple Sclerosis Quarterly Report, which is provided to all registry participants free of charge. For additional information or to request English or Spanish enrollment forms or other material, please call 1-800-253-7884 or contact us at This e-mail address is being protected from spambots. You need JavaScript enabled to view it .

In 2008, NARCOMS implemented a nationwide enrollment effort to expand the registry and include the Spanish speaking population. There is a Spanish language version of all of the NARCOMS materials, including the website and the survey tools used to collect patient information, thus enhancing the research community’s ability to investigate the impact of MS in Spanish-speaking areas throughout the world.

The NARCOMS Registry is the largest Registry of its kind in the world, and provides investigators in the field of MS research with a way to quickly and confidentially identify and notify large numbers of people with MS about new research studies for which they may be eligible. Collaboration between providers of health care, researchers, patients and caregivers is essential to rapid progress in the development of better treatments for MS that may ultimately lead to a cure.